Peanut had her tonsils and adenoids removed on Thursday. The doctor said it was successful. During the procedure he did a scope as well…and because of that we will be monitoring Peanut a little more until a plan is in place. Don’t want to go into details about it right now. After we see him in September for her follow up I’ll bring you into the loop. Right now we are focusing on getting Peanut back to 100%.
So far she has been doing pretty great. We only stayed in the hospital overnight because she was eating and drinking enough. We were actually incredibly surprised at how great she has been. We expected the recovery to be horrible. It seemed like things were progressing quickly. Then last night hit! First she was so uncomfortable that she didn’t lay down until 1:30 am. Honestly Juan and I passed out so we are not even sure what time she finally fells asleep. However, at 4:30 she woke us up screaming. After more Motrin and some snuggles, we finally got her back down around 5:30. She woke up again around 11 and has been miserable since. She is refusing to eat or drink because swallowing hurts so much. Its so hard seeing her in so much pain and not being able to help. We are praying this drop passes. We were prepared (kinda) that the 4th or 5th day after surgery is always the worse.
So right now Peanut has been our focus.
Then the craziest thing happened yesterday! Peanut went viral! Like legit…over 1 million views! How did this happen? I’m not really sure. We have her videos going through a company called Newsflare. Because there have been so much bullying online against the DS community, Newsflare monitors when the videos have been downloaded and notify us. So two UK media sites posted her walking video on their site and it went crazy. As soon as I saw it and saw so many comments my heart stopped. In the past I’ve read horrible hateful things on some of Peanut’s buddies images and videos. I was expecting the worse. There were a handful that I read that filled me with anger. How people are so mean is beyond me. But was surprised me was how many people stuck up for Peanut and attacked those mean people right back. Now, I can’t condone words that were said, but it touched my heart that strangers stuck up for our baby girl. She received so much love and support from so many people. I’ve always known Peanut is destined to change the world! She has already changed it for those who love her. I am honored to be her mama and watch the world fall in love with her to! Who knows, maybe one day you’ll be watching her on TV or seeing her beautiful face in a magazine ad 🙂
Sitting in protest
This past week Jana has been making her therapist work! She has not been cooperating and honestly, has been throwing a few tantrums here and there. She has officially started army-crawling on her own pretty consistently. Before rolling was her way to go…literally rolled EVERYWHERE! But now she has realized that she can just push herself forward a little and get where she wants faster. What does this mean for therapy? We now instantly are forcing her to work on crawling on her hands and knees! She is NOT happy about it. Her therapist explained it to me like this, Jana’s mind has figured out first how to roll and now how to arm crawl. In her head she knows how to get where she wants, shes good at it, and doesn’t need to change what she’s doing. Prior to her army crawling on her own, she didn’t mind us working on her hands and knees. I find that so interesting! As soon as her mind clicked and learned one task, she now fights moving forward to learn the next steps.
Refusing to move!
So here we are. I am now forcing her to work throughout the day. I have been getting a LOT of bad looks and some screaming. But she’s doing it. Still in her shoes all day…but now we’ve added a pair of high top Converse…cause well they are cuter 🙂 I’ve posted a few videos from her therapy. For those of you who still think she always so sweet and quiet…you should have a look! lol
So I shared with all of you recently that Jana is now officially moving herself into sit position like a pro (check it out here if you missed it). It seems like these past two weeks something clicked and she has reached a few more milestones! It all has happened at perfect timing because honestly, I was starting to get discouraged. Jana had seemed to be at a stand still for a few months and from what our physical therapist tells me, its completely normal. But seeing some progress really helps motivate me to keep pushing her.
First thing that happened this past week is that she started finally sucking! Lol…I’m not sure how else to start that, so let me explain. I’ve been working with her on using a straw for months now. Straw drinking is encouraged for DS babies because it uses different muscles in their mouths. Thus, helping them be able to have better control of their mouths and tongue. I’ve gone through about 4-5 different cups, even one that is “geared” for DS kids that cost me $15! None of them worked though. She just couldn’t get the concept of sucking. Until one day…she did! It started with a small disposable kids cup (you know the ones they give you at restaurants) and it was only once very quickly. So I moved over to trying to get her to eat out of the squeeze pouches. I’ve heard this is sometimes easy. And we had success!! She ate it like a pro and this had made meal time so much more easier on both of us!! Now she is drinking out of any straws and loves that she can do it on her own. We even purchased this adorable Minnie Mouse straw that is an obvious hit! Check out her sucking skills here:
Second milestone was at physical therapy. We’ve always tried to get Jana to do some time on her knees but she would either sit on her feet or lean on everything with her chin and go limp. She did not see the purpose of messing up her beautiful little knees 🙂 But on Wed at therapy, without any complaining at all, Jana went straight on her knees. Balancing herself and was even able to move back into sit position! This was so great to see! She realized she could use both her hands and be high enough to reach the toys in view. Her therapist was so proud of her…and so was I 🙂 This will help her prepare her muscles for crawling soon!!
Lastly, I wanted to share this with you…this isn’t a milestone at all but still pretty awesome. Yesterday was Jojo’s 15th birthday. I was going through baby pictures of him and found this. Jojo is about 5 months old in this photo and Jana is 14 months. Instantly looking at Joeys pictures, I saw how much they look alike! I always felt like she looked like Jaylen. They have the same skin tone and cute little button noses. But I never tied her into the boys. Until now! It is so amazing to see how much they resemble each other. Honestly, people never question if she is mine or not. I feel like she fits in our family almost perfectly. Now don’t get me wrong, I think an amazing part of adoption is the differences that make a family beautiful. When different races are brought together with pure love! But maybe God knew what a tough first month Jana would have and just wanted her to feel like she finally fit. Maybe we were suppose to just always be her forever family. Whatever it was, she was perfect for us…and one day when we share her adoption story with her, seeing pictures like this will help her see how much God had a plan for her.
For the past week, I’ve caught Jana sitting up when no one helped her. I never actually got to watch her do it though. Wed night I finally did!! I almost screamed as she took the correct steps to move herself into sit position!! We’ve been working on it for months and I am soooo proud of her.
Last night I was finally able to catch her on camera! She is now a sitting pro, doing it almost on request. I just wanted to share it with all of you!! I hope you are as excited for her as we are 🙂
Big things to share with you today!! First of all, Jana slept through the night for the first time since November!! She went to sleep around 11:30 and I had to wake her up at 8:15 to get ready for physical therapy. I honestly woke up like a new mom, instantly thinking she stopped breathing or something horrible. But nope, she was peacefully sleeping. We were surprised because yesterday was a very rough day. She was extremely tired and grouchy, complaining most of the day. We honestly went to bed figuring she’d be up all night. But last night we gave her a bath and added a little bit of aromatherapy bubble bath. We figured it was worth a shot, because baths usually don’t make a difference if she sleeps or not. So I’m not sure if it was the aromatherapy or not! After her bath she had her normal 1 hour full of hyperness and then some milk. She crashed right after. So this Friday we’ll be in San Diego and I plan on purchasing some essential oils to try out. After doing some research I’ve found that lavender and roman chamomile have both been known to help with sleep issues. So if any of you readers know any tips on essential oils, please let me know!!
Second big news! Since Jana has been doing so much better on her army crawling, Betty, her therapist, decided we should start working on crawling on all fours. Normally when we try Jana face plants almost immediately because she doesn’t move her arms. She either locks out or just moves them both at the same time. So to watch her actually do what she needed to do, I was so proud!! It is just a small step, something that seems so insignificant, but trust me its HUGE!! It can take up to 6 months for her to master crawling so I know we still have a long way to go. But its progress!! Check her out!!
Hope you all have an amazing weekend! Just wanted to share this incredibly adorable video. This little guy has a rare disorder called Oculocutaneous Albinism which affects his vision. He just received his glasses for the first time and is finally getting a good look at his mama. Watch the perfect reaction!!